Public Health Wales
Queen Mary University, London
Country of intervention
About the project
EUROlinkCAT is a horizon2020 project funded by the EU. The project aims to link congenital anomaly data with other data sets, to look at long term survival and mortality, educational achievement and burden on health service. CARIS will link with various other data sets held in SAIL (Swansea University).
What does your project involve?
Linkage of data on congenital anomalies with other data sources:
- ONS data for survival/ mortality
- Other health data - co-morbidities/ time spent in hospital
- Education - achievement level of children with anomalies
The aim of the work is to link with other similar registers across Europe and provide long term follow up on live born babies with anomalies. This will help address the deficit of knowledge in this area and lead to better parental counseling etc. This work locally is being done in partnership with Swansea University and SAIL database.
Long term outcomes for children with congenital anomalies. Better knowledge to share with future parents.